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Every event, every penny, and every pound helps towards making a difference to the lives of patients living with NMO.
NMO Charitable Funds
Walton Centre: 4911
John Radcliffe: 2131
Research in NMO
Due to the rarity of neuromyelitis optica currently there is little research available . Hence the importance for the 2 national centres to recruit as many of the NMO poulation into different trials as possible. This will gain further understanding towards future treatment and management of NMO
Please contact the following for further information;
Dr Anu Jacob consultant neurologist at Walton Centre, Liverpool. 0151 529 8357
Dr Jackie Palace consultant neurologist at John Radcliffe Hospital Oxford 01865 231905
Professor Angela Vincent consultant immunologist at John Radcliffe.
Some of the current research
Epidemiology, immunology, genetics and treatment of NMO and related disorders in the UK.
To find out the characteristics of NMO and related conditions, natural history and response to treatment
Treatment of Neuromyelitis Optica with azathioprine
this is a retrospective multi-centre case series of patients with NMO treated with azathioprine
To improve the psychological care of people with NMO and their families
Through better self-management and provision by the specialist NMO services in Liverpool and Oxford, national neurology services, GPs, and voluntary sector providers.
1. To produce evidence-based information booklets for (i) people with NMO, (ii) family members and (iii) professionals about the emotional adjustment to NMO and advice for good psychological care and support.
2. To ensure the booklets are made widely available to people with NMO, families and carers, health professionals and the voluntary sector.
3. To provide advice for clinicians about whether cognitive testing and advice needs to be incorporated into routine assessments at clinics for people with NMO.
Evaluation of the impact of NMO on patient’s employment, driving, activities of daily living and leisure
Persons with NMO can visually impaired and lose limb function. This in turn can affect not only their health but employment, activities of daily living and leisure reducing overall quality of life. However no data exists on these important aspects. Hence no strategies have been put in place to improve these.
1. From a multidisciplinary perspective investigate the impact of NMO on employment driving, activities of daily living and leisure.
2. To evaluate the information gained
a. to refine service provision
b. create specific patient centred information
c. inform healthcare professionals
Using MRI to explore Brain and Spinal Cord in NMO
The Medical Research Council is sponsoring an MRI study to compare the characteristics of people with NMO with people with relapsing remitting multiple sclerosis and no neurological condition.
Cross-Sectional Studies of Symptoms in NMO
To determine the frequency and association of symptoms and NMO such as pain, bladder, bowel, sexual dysfunction, spasms, mood