Living with Pain

Pain is often caused by transverse myelitis (TM). Although there are different types of pain.

♦  Neuropathic (nerve) pain arising directly from damaged nerves in the spine, there are no particular triggers. This pain is described as burning, sharp, electrical shock, shooting or an uncomfortable numbness. Medication suggestions are Amitriptyline, Gabapentin, Pregabalin and Carbamazepine.

♦  Nociceptive (musculoskeletal) pain often a more obvious cause, such as banging your knee. In NMO, most common cause is pressure on joints from altered gait (the way you walk), medication suggestions such as paracetomol or brufen may be helpful.

♦  Increased muscle tone and spasms arises from damaged nerves in spinal cord that affects the control of muscles, including when they contract and relax. This can present as prolonged contractions of the muscles, which are called spasms. Medication suggestions are Baclofen, Tizanidine, Gabapentin.

♦  Tonic Spasms this is a painful spasm of the muscles that lasts seconds to minutes but frequently. Often it’s controlled by Carbamazepine at low doses.


An excellent website provides monthly newsletters on many different ways to coping with pain such as ‘pain and loss,’ depression, ‘the green eyed monster.’  Jan Sadler, the founder of the website is doing a great job in providing help and support for all people who regularly have their life ruled by pain.


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Your help

If you have any ideas that help you cope with pain in some way, please let us know on