Living with Pain

Pain is often caused by transverse myelitis (TM). There are 4 main types of pain people with TM can have:

♦  Neuropathic (nerve) pain arising directly from damaged nerves in the spine, there are no particular triggers. This pain is described as burning, sharp, electrical shock, shooting or an uncomfortable numbness. Medication suggestions are Amitriptyline, Gabapentin, Pregabalin and Carbamazepine.

♦  Nociceptive (musculoskeletal) pain often a more obvious cause, such as banging your knee. In NMOSD, the most common cause is pressure on joints from altered gait (the way you walk), medication suggestions such as paracetamol or ibuprofen may be helpful.

♦  Increased muscle tone and spasms arises from damaged nerves in spinal cord that affects the control of muscles, including when they contract and relax. This can present as prolonged contractions of the muscles, which are called spasms. Medication suggestions are Baclofen, Tizanidine, Gabapentin.

♦  Tonic Spasms this is a painful spasm of the muscles that lasts seconds to minutes but frequently. Often, it’s controlled by Carbamazepine at low doses.

 

Helpful websites

Painsupport – is a UK group offering chronic pain support, advice and pain relief information run by Jan Sadler, who has lived with the challenges of back pain and sciatica for many years and so understands the experience of living with chronic pain. Jan was awarded an MBE in 2012 for her work with PainSupport and her services to pain management.

The NHS offers help and advice on pain.  Find out how to get help from the NHS if you have persistent pain. … Read some advice from Pain Support on preparing for your GP appointment.

The British Pain society  aims to promote education, training, research and development in all fields of pain. It endeavours to increase both professional and public awareness of the prevalence of pain and the facilities that are available for its management.

Pain UK is an alliance of charities providing support and help for those living with pain. Pain management, healthcare advice. tips and resources available.

Pain concern works to improve the lives of people living with pain and those who care for them

Hypnotherapy Directory was launched to connect individuals with qualified professionals in the UK. We offer information about what hypnotherapy is, how it can help, upcoming events, articles written by professionals and the latest hypnotherapy news. .

Your help

If you have any ideas that help you cope with pain in some way, please let us know on nmo.advice@thewaltoncentre.nhs.uk